College roommates!

My Return To Optimism

Date: September 4, 2012 at 9:15 am- by Ali- Comment(s): 52

I remember going for a run in New Jersey on July 4th of this year. I was on a mini-vacation with friends and my stomach felt off. Still, I tried to run with my speedy lady friends as best I could, because when there’s a path along the beach, you should run on it no matter what. But after two fast-for-me miles, I had to pull away from the group so I could spend some time in the beach-side bathroom.

Since that day, exactly two months ago, I felt sick.

I felt sick every single day.

I woke up every morning with a cramped, rumbling stomach.

I ate every meal with apprehension, never knowing how it would digest.

I used up every sick day I had left at work, and tacked on a lot of work-from-home-slash-the-bathroom days, too.

When I tried to run, whether it was four miles or 14, I made countless stops at the tennis court bathrooms, the Boathouse bathrooms and, when it got really really bad, the make-your-own bathrooms known as “the woods.”

I grew more frustrated every day. I spent my entire summer feeling sick, never wanting to make plans with people because I knew I’d end up bailing on account of “the Crohn’s thing.” I didn’t take vacations, and I rarely left my apartment, let alone the city. I was constantly fatigued, irritable and in pain. And marathon training?

Yes, I joined DailyMile for four seconds. No, I don't want to be your DailyMile friend. I just want someone else to add up my miles for me. I don't need "motivation" every time I exercise. Thank you for offering, though.

Well, marathon training wasn’t exactly happening as I’d hoped.

All the frustration with being sick culminated in a three-day stay at Mount Sinai Medical Center.

Checked in with my GPS.

The three days I spent in the hospital were awful. I hated it there. I hated the tests. I hated getting stuck with needles every hour. I hated the nurses who never seemed to have a clue what was going on and kept bringing me the wrong medications. I hated the “food” they allowed me to have.

This is supposed to make me better?

But the whole time I was there, I tried to tell myself being admitted was for the best. The doctors were going to take a close look inside my intestines and my colon, and they were going to figure things out. Yeah, the barium was disgusting. Yeah, I puked it up. And yeah, the colonoscopy juice was gross, and yeah I vomited a lot of that as well.

I spent every single minute in that hospital wishing I could escape.

After 20 years with this disease and two straight months of feeling painfully ill, I’d started having a hard time seeing the light at the end of the tunnel. I had convinced myself that this was my new life: sleepless nights, constant stomach cramping, joint pain, no appetite, no more running, no social life, no fun and way too much urgent time in the bathroom.

The doctors weren’t having it, though. They took their fancy cameras, and they checked out my little bowels and my big bowels (does anyone else find the word “bowel” to be ugly?).

Their verdict?

“It’s all great news.”

THERE'S A DRAGON IN MY HOSPITAL BED.

My doctor and his right-hand-man (really just another doctor who happened to be the one to perform my colonoscopy) both spent a lot of time talking with me on Friday to explain what they saw. They both seemed optimistic and they had a plan. They saw the disease, they prescribed new medications and we’re going to take it all slowly. I have to “be patient” because there’s “no overnight cure.” But I’m OK with that.

Dr. Half Marathoner even said “this plan will give you a great shot at running the marathon.”

I was skeptical, of course, because I’ve been on plenty of medications in the past and they haven’t worked. Clearly. But these doctors are new to me, and they’re cuter than doctors I’ve had in the past which must mean they know what’s up.

I stayed in the hospital all day Friday getting my Remicade infusion while I Skyped with Tyler & Co.

Time flies when you're chatting with your entire family. Kind of. Time actually still goes really slowly, because you're in a hospital.

Finally, at 10 PM on Friday, Nurse Edward came to my room armed with my discharge paperwork and a handful of prescriptions.

I was free to leave.

I AM SO HAPPY TO LEAVE PRISON.

Truthfully, I was so happy to get out of the hospital but I was also a little discouraged to be leaving feeling just as shitty as I was when I got there. Yeah, I’d endured all the tests and I had a plan going forward. But I guess I kind of expected to walk out of Mount Sinai feeling at least a little bit better.

On Saturday, I avoided social media and stayed in bed until 1 PM.

I didn’t feel better.

I took all my pills, I refused to look at my Garmin or my Brooks, and I was nervous about starting to eat solid foods again. I just felt sort of weird.

Then, I woke up Sunday and felt OK.

Not great.

But not terrible.

And after two months of terrible, I’ll take OK.

As the day went on, I continued to feel OK. I showered. I washed my hair. I even made it to that wedding in New Jersey.

BRIAN, CAN YOU FIX OUR CRAZY EYES IN THIS PICTURE, PLEASE? Thanks.

I didn’t drink and I was careful about what I ate all night. I didn’t want to miss the good stuff on account of being in the bathroom. And I made it through just fine. I even danced, and everyone thought I was wasted, but really I’m just an awful dancer.

Sorry that I have no moves.

It ended up being a great night, and for just a few hours I forgot about the hospital and forgot about the fact that just a few days prior I’d been downing colonoscopy potion and was chained to the bathroom.

College roommates!

We didn’t get back to the city until late Sunday night.

On Monday, I slept in again. I didn’t set an alarm all weekend, which was definitely necessary.

I woke up and felt more OK than the day before.

Eventually, I felt OK enough to look at my Brooks. I felt OK enough to put them on and I felt OK enough to take them out for a gentle, doctor-approved spin around Central Park.

I ran slowly and I certainly didn’t run the 18–20 miles the rest of my New York City Marathon-training friends were out running this weekend.

But I ran.

And I felt OK.

I didn’t make a million bathroom stops.

In fact, I only made one.

I didn’t run far and I didn’t run fast. But for a few miles, I felt like myself again.

It has been a long, long road and for months I have let this disease totally kick my ass. I’ve felt sad, I’ve felt frustrated and I’ve felt a kind of agony that I never thought I’d feel from a lame digestive disease. I’ve wanted to give up. I’ve wanted to just quit trying to figure things out and I’ve wanted to stay in bed all day. (OK, I still kind of want to stay in bed all day, because that sounds awesome.)

But not anymore.

I’m not “fixed.” I’m certainly not “cured.” I’m not even fully better yet.

I finally know that I will be, though. I’ll be OK. It may take some time. It may take some trial and error. It may take more Remicade and someday down the road it may take another hospital stay and more tests.

You'd find ways to entertain yourself, too. With medicine cups…

For two months, I was convinced I would never get better.

My optimism is back, now. And I think healthy days are right around the corner.

In case my words are not enough proof that I am, in fact, returning to my regular mental state of “happy,” here are two cute things:

Cute Thing #1: This puppy. Thank you, Anna, for seeing this and thinking "Ali needs to know this puppy exists." I love you for it.

Cute Thing #2: Tyler got so tired of hearing me talk about being diseased that he passed out on the living room floor. Sometimes I think we have everything in common. Also, baby sweatpants are the coolest.

I’m off to have a great day. I hope you’re planning to do the same.

And truly, from the bottom of my sick-but-getting-better heart, thank you for the incredible kindness over these past few days. The Tweets, the emails, the puppy photos — you all made me feel very loved and slightly less sick, and I appreciate it so much. I’m a lucky, lucky girl. Hugs for everyone.

Comments (52)
 
Snuggling post-MRI. Hospital beds are so cozy!

Admitted

Date: August 31, 2012 at 9:02 am- by Ali- Comment(s): 127

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Date: August 27, 2012 at 9:00 am- by Ali- Comment(s): 76

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I like your leotard, Tyler.

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Date: August 23, 2012 at 9:09 am- by Ali- Comment(s): 48

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Not Myself

Date: August 20, 2012 at 9:07 am- by Ali- Comment(s): 105

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Posted in Crohn's disease and tagged -
 
Meow.

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Date: August 16, 2012 at 7:15 am- by Ali- Comment(s): 34

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Date: August 13, 2012 at 9:38 am- by Ali- Comment(s): 73

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Posted in Biking and tagged -
 
Who wants one?

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Date: August 10, 2012 at 9:05 am- by Ali- Comment(s): 489

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Date: August 9, 2012 at 9:26 am- by Ali- Comment(s): 40

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I just really want you to get a better idea of what the exam room looked like. Really unique.

Dr. Wonderful

Date: August 8, 2012 at 7:07 am- by Ali- Comment(s): 52

The post title says it all, right? I obviously hate my new doctor. False! Lies! I adore him. After a few extra-frustrating days, I really needed a pick-me-up last night. I had booked this appointment with a new GI doctor [...]