Speaking of "magical"...

Work In Progress

Date: August 18, 2013 at 2:39 pm- by Ali- Comment(s): 44

Hi!

I’m happy to report that these days I’m operating at something like an 87% “normal health” rate.

I wake up in the morning and my stomach says, “I’m going to make this rough on you.”

Wake up in the mornin' feeling like P. Diddy. Got my sunrise and I'm chillin' and I don't knooooow the lyrics.

Wake up in the mornin’ feeling like P. Diddy. Got my sunrise and I’m chillin’ and I don’t knooooow the lyrics.

But eventually, usually after two hours or so, that mostly passes and I can function pretty normally during the day, save for a few emergency runs to the bathroom usually around meal time, meeting times or anything else that causes the slightest bit of anxiety for me.

So naturally, my reappearance at the office, at social functions and here on the internet has prompted inquiring minds to ask, “What’s working? Do you think the Humira is finally kicking in?”

It’s a fair question, and it’s one I don’t seem to have the answer to. My answer usually goes something like this:

“I don’t know, honestly! I’m still doing the Humira injections every week, but I think it could be the combination of the Humira and the 6 MP, since we upped my dose of the 6 MP and the doctors said it would take around three months to kick in anyway. So it could be that. I’m also on a steroid, Budesonide, which supposedly targets the colon, so it could also be that. And I just wrapped up my time on Xifaxan, which was supposed to help with the bloating and the fact that anytime I ate my stomach became so distended that I looked like a pregnant lady about to pop. So I don’t know…it could be any of those things. Oh, and I’m trying to be less stressed. I don’t make lists anymore. That probably helps, too.”

Translation: “I have no F-ing clue. But I’m pretty psyched about it.”

My definition of "psyched." Dairy Queen, you are the truest love of my life.

My definition of “psyched.” Dairy Queen, you are the truest love of my life.

There’s a lot of trial and error happening right now, and I’m certainly making my fair share of errors along the way.

Like with the peanuts.

The dang, stupid peanuts.

I keep eating them and I keep getting really sick soon after.

But then I keep eating them, thinking “maybe it wasn’t the peanuts.”

Turns out, it is the peanuts. It has to be the peanuts.

So I need to stop eating peanuts. That’s an easily avoidable error. I don’t even like peanuts that much, except when they’re tucked neatly inside some chocolate and a hard-shelled casing. M&Ms, they’re called. I like peanut M&Ms.

Also that chopped salad I had for lunch the other day.

I’m trying to figure the food stuff out, which is an annoying process.

Nevermind: Got it ALL figured out!

Nevermind: Got it ALL figured out!

I’m happily working my way through the things that are helping, too, though. So it’s not all bad and frustrating.

Some other things that are working for me…

Family time. As much of it as possible.

Cousin Jennifer (she ran the New York City Marathon in 2010!), Aunt Donna (whose house is for sale, FYI...want it?), Honey, mom and meeeeee!

Cousin Jennifer (she ran the New York City Marathon in 2010!), Aunt Donna (whose house is for sale, FYI…want it?), Honey, mom and meeeeee!

I’m talking parents, brother, sister-in-law, BFF Tyler, aunts, uncles, cousins, the whole tree. I was able to escape the city a few weeks ago to spend some time in Ocean City, NJ, where my aunt lives in a gorgeous home with tons of windows overlooking the bay.

Waking up to these views? Sucks.

Waking up to these views? Sucks.

It’s one of the most relaxing places I can imagine and I love going there when I really need to chill out.

Mission accomplished.

That's me, in a flip flop, being chilled out.

That’s me, in a flip flop, being chilled out.

Friend time. Whether it’s in real life or on GChat, I’m always realizing how important it is to surround myself with only the very best, most understanding, least stressful people. I’m lucky to have just enough wonderful friends to make me feel fulfilled.

Just a normal day...at the amusement park in Central Park with my dear buddy Kristan. THAT'S WHAT ADULTS DO, OK???

Just a normal day…at the amusement park in Central Park with my dear buddy Kristan. THAT’S WHAT ADULTS DO, OK???

I haven't showed you Tyler in a while, so here begins a series of photos. This is Tyler at meal time, which is my favorite time to chat with him because he's locked in and cannot escape. He HAS to sit and give me his full attention. Meal time also prompted Tyler to say his first word!!! He can say "turkey," which makes me impossibly proud because not only was his first word multiple syllables, but it's also a food word.

I haven’t showed you Tyler in a while, so here begins a series of photos. This is Tyler at meal time, which is my favorite time to chat with him because he’s locked in and cannot escape. He HAS to sit and give me his full attention. Meal time also prompted Tyler to say his first word!!! He can say “turkey,” which makes me impossibly proud because not only was his first word multiple syllables, but it’s also a food word.

ISN'T HE HUGE?

ISN’T HE HUGE? Like huge compared to when you last saw him. Not huge in general. He’s average baby size, though I do think his head is a bit big for his body.

Taking a call while he's lifting weights. A multi-tasker just like his auntie!

Taking a call while he’s lifting weights. A multi-tasker just like his auntie!

Selena Gomez. She makes me smile every single time I walk through the door.

Safety first, homegirl.

Safety first, homegirl. Home…BOY. Selena Gomez is a BOY.

Riding my bike. I’ve gone on a few great rides recently and I’m glad I overcame my fear of hopping back on my Lexa after I crashed it last December. Riding is easy on the stomach, gentle on the joints and it’s fun!

Not as adorable as my lime green Adrenalines, but whatever. I'll take them for now.

Not as adorable as my lime green Adrenalines, but whatever. I’ll take them for now.

Being near the water. Oceans, lakes, rivers, ponds, streams, puddles…any body of water I can find seems to bring a sense of calm to my world.

Central Park Water.

Central Park Water.

Pool water. This is not my house. You should always have at least one friend who has a house like this though.

Pool water. This is not my house. You should always have at least one friend who has a house like this though.

River Water.

River Water.

The new couch. Thank god.

This was not the happy life I was supposed to be living...

This was not the happy life I was supposed to be living…

Not recording my workouts. As I work my way back into a regular exercise regime, it’s so nice just doing whatever I want. I’m not on a marathon training plan, I’m not trying to hit pace or mileage goals and I’m not writing anything down.

I used to keep an obsessive log listing every workout I did. Having a huge notebook filled with daily mileage totals made it hard for me to take a day off because I liked seeing every single day listed in the notebook. I even had a spreadsheet that I printed every two weeks where I’d tally up my daily number of crunches, butt lifts, planks and push-ups (the push-up column was usually left empty…). At the time, I didn’t see a problem with this. Now I can recognize about a billion problems with that little system. And I’m so much happier without it, even if I can’t even come close to holding a five-minute plank these days.

In conclusion to this section: It appears as though I’m happier and healthier when I’m able to avoid stress and obsess less over life’s silly details.

Good to know.

The meds are probably helping, too.

So what’s not working?

Peanuts.

Chopped salads.

Running. I had a few amazing, magical, life-changing runs when I finally got back at it and then boom, everything started to hurt. Namely my right Achilles tendon.

I was out for a run one day in New Jersey, going over the new bridge from Somers Point to Ocean City. Running over the bridge was amazing. It has these seemingly-monstrous hills that are short but challenging, and the views are to-die-for. But a few miles into the run, I developed this weird pain in my lower calf. I stopped to stretch it out, thinking it was just a little ache, but when I tried to start running again the pain got worse.

Brian rode by on his bike and snapped this gem. Had I brushed my hair in three days? Absolutely not.

Brian rode by on his bike and snapped this gem. Had I brushed my hair in three days? Absolutely not. Also that heel strike…YIKES! That’s bad, right?

I cut the run short, sort of limped back to the house, jumped in the pool and haven’t run since.

I ran 13.1 miles and got myself straight into the pool afterward. A few days later, BOOM, Achilles pain. No surprise there, really.

I ran 13.1 miles and got myself straight into the pool afterward. A few days later, BOOM, Achilles pain. No surprise there, really.

I’d rather not aggravate this into a full-blown injury, and since I’m not putting pressure on myself to run any races this year, I’m just staying off it, stretching my calves, foam rolling, icing and hoping eventually I’ll be back up and running again…maybe with a more gradual mileage increase this time.

Going to work. I’m still technically on medical leave, but I’m going in whenever I’m able. And the transition has been really difficult for me. I’m worried I rushed back to the office too soon, before I was mentally ready, but I had to. There was work to be done.

So now I’m in at least a few days a week (three on average) and it’s tough. I’m trying to readjust to the working girl lifestyle, and I’m trying to get my team back to where we were before I got sick.

Work is stressful. That’s a given. I tend not to sleep well the nights before I go in, and once I’m there things are crazy and I’m trying to get caught up and that stress immediately triggers my stomach into overdrive-mode.

To conclude this section: Anything that is even remotely anxiety-inducing is bad. Also peanuts and chopped up roughage covered in dressing.

I’m hoping that as I move forward, I will keep doing just that: moving forward. And hopefully, eventually, I’ll be able to move forward in running shoes, at a sub-9-minute-mile pace, perhaps even across a finish line. I hope there will be fewer errors throughout my trials.

Went to a wedding in Rhode Island this weekend and tried to fit in by having as much Del's Lemonade as possible.

Went to a wedding in Rhode Island this weekend and tried to fit in by having as much Del’s Lemonade as possible.

Even on the great days, I tend to tell myself that it’s OK to make mistakes, to have an off day or to completely lose my head. I’ve accepted that 2013 just won’t be my year — but that 2014 really is right around the corner.

And maybe the fall has something magical in store for me.

Speaking of "magical"...

Speaking of “magical”…

Maybe 2013 won’t be a total wash.

We’ll see.

It’s a work in progress.

But I think it’s working.

Comments (44)
Posted in Crohn's disease and tagged -
 
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Date: August 12, 2013 at 7:20 am- by Ali- Comment(s): 9

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Date: July 31, 2013 at 5:13 am- by Ali- Comment(s): 74

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Date: July 22, 2013 at 6:00 am- by Ali- Comment(s): 54

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"I Heart Sweat" Shirt Giveaway Winners

Date: July 15, 2013 at 4:45 pm- by Ali- Comment(s): 24

A [much much] longer post is on the way with all kinds of information about my life, like how sometimes after I give myself Humira shots I can’t really breathe for the rest of the day, but also happy things […]

Posted in Giveaways and tagged , -
 
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Date: July 9, 2013 at 7:57 am- by Ali- Comment(s): 453

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Date: July 2, 2013 at 2:35 pm- by Ali- Comment(s): 47

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Here It Is!

Date: June 24, 2013 at 12:29 pm- by Ali- Comment(s): 136

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Not The Happy Post...Yet

Date: June 18, 2013 at 11:01 am- by Ali- Comment(s): 48

After last weekend (as in June 8 — I know it’s been a while here, but you’re smart, you follow along), I was all set to jump in here and write that “I feel signs of improvement!” post we’ve all […]