Ali on the Run Show Episode 30: My Crohn's Disease Story

Date: May 23, 2017 at 6:49 am- by Ali- Comment(s): 7

The Ali on the Run Show

Episode 30

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I was diagnosed with Crohn’s disease when I was 7 years old. It was a scary, confusing time in my life, and while I’d love to say I’ve figured it all out since then, the truth is that this disease constantly keeps me on my toes. I’m someone who loves to live life according to plan, but living with a chronic, incurable illness makes that pretty tough — and has forced me to adjust to a life of uncertainty. I’m going through a Crohn’s flare right now (boo!), so on this episode I’m sharing exactly what that feels like, why I think it happens, and why I keep running — bathroom stops and all. (There’s a lot of bathroom talk in this one. Get excited!)

Stuff I Mention on this Episode:

Episode 2 of the Ali on the Run Show: Being Married to Someone With Crohn’s Disease

Crohn’s & Colitis Awareness Week

The Mental & Emotional Side of Crohn’s Disease

Running With Crohn’s Disease

What Crohn’s Disease Feels Like

A Plea From a Girl With Crohn’s: Please Let Me Use Your Bathroom

What Your Friends With Crohn’s Disease & Ulcerative Colitis Want You to Know

Things That Make Having Crohn’s Easier (And a Few Things That Make It Worse)

What to Know Before Enrolling in a Clinical Trial

When the Person You Love Has Crohn’s Disease

When Your Kid Has Crohn’s

Life After a Clinical Trial

2017 Airbnb Brooklyn Half Recap

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7 Responses to "Ali on the Run Show Episode 30: My Crohn's Disease Story"

Catherine says: May 24, 2017 at 10:41 am

I just listened to your Crohn’s Disease episode, and I wanted to thank you for having such an open and honest discussion about it! I found it very informative and real. I totally agree that we need to be more open as a society about bodily functions – they are nothing to be ashamed or embarrassed about! I personally don’t have anything like Crohn’s or another disease that affects my bodily functions, but my younger brother was born with a host of medical problems, so growing up with him, I have absolutely zero problems or filter when it comes to all of that, and I wish more people felt the same! Hopefully other listeners gained as much or more from this episode as I did. (Also, as a runner, I DEFINITELY have my own on-the-run pooping emergency stories!)

HelloDarknessMyOldFriend says: May 24, 2017 at 3:25 pm

Hello Ali! (Sorry for my bad english i from northen Europe)

Find your pod when I was googleing “Crohn desease depression”

I am a fellow “crohnie”. I been having it since I was 6-7 years old. I am 30 years old now and physically
i have been fine for 8 years, no flare ups. But mentally I am destroyed. As you describe it with feeling empty, no joy in anything , wishing for something to run me over. I feel sadness all the time, darkness, what the point of every thing.

How did you get over this things? I am taking medications for crohn, social fobi,agora fobia, ADD, GAD, depression, vitamines and for high blood pressure, I also workout.

Listning too your pod made me feel a little better.

Keep it up! Looking forward too the next episode!

Hi! I’m so sorry to hear you’re having a hard time with your Crohn’s, and I’m sending so much love and good health your way. As for the periods of darkness — I wish I had something better or more reassuring to offer, but the only thing that helped me was time. I spent a long time in that dark place, and I still revert back there whenever I get sick. For me, it’s often situational, so as my physical health improves, my mental state follows. I would also recommend finding someone to talk to, whether that’s a trained professional or just a good friend who can really sit with you and listen. It does help. <3

Thanks so much for sharing, Ali!
When I first started darting from bathroom to bathroom on my runs, I thought I was the only one!! I so, so appreciate your openness and honesty on this site. It makes so many of us that struggle with IBD/IBS issues feel less alone.

Great pics and insights, thanks for posting. I’m also training for a half marathon with SportMe running app which calculates distance, time, pace and calories.

Hi Ali, I’ve been really loving the podcasts and just wanted to let you that some of them aren’t showing up on Stitcher – in particular, this episode and episode 9.
Keep up the good work!

Hi Ali! Thank you so much for this post. I found your blog when I was diagnosed with Crohns over a year ago and all your posts and podcasts have helped me through all those times I can’t go out with friends, the months I lived on the couch/toilet and all dark times that come with this awful disease.
I’m in remission right now (FINALLY!) after trial and error of 100 different meds (yay humira) and am training for my first half marathon 🙂
Please keep up the awesome work!! Sending lots of love and health all the way from Sydney, Australia