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- January 16, 2015 by AliA Crohn's Update + Things To Know About Enrolling In A Clinical Trial
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A Super Fun Time With My Doctor
[Insert sarcasm here.]
I went to my doctor yesterday. You remember the guy: poor bedside manner, condescending, doesn’t think “people with Crohn’s disease should be runners.”
He’s so great.
So great, in fact, that I took a little visit to see him yesterday.
Here’s how the visit went…
Doctor: Hey there. How ya doin?
Ali: I’m good.
Doctor: You don’t usually come see me when you’re “good.”
Ali: Haha, good call. I don’t feel so hot. I think I’m having a flare. I ran my marathon, though!
Doctor: Yeah? What was your time? Like 4 hours?
Doctor: Nice. OK, so remind me of your case. When were you diagnosed?
Ali in head: Seriously? This guy couldn’t take two minutes to read my chart before I came in? And haven’t I been seeing him for four years now?
Ali out loud: I was diagnosed when I was 7.
Doctor: OK, and why was that your diagnosis?
Ali: Well my pediatric GI did an endoscopy, and my dad passed out while it was happening, which was kind of funny, because he tried really hard not to pass out but he just couldn’t help it…so she did that test, and I had a CT scan, and they said I had Crohn’s. That’s really all I remember because I was so young.
Doctor: Do you have your pediatric GI records?
Ali: Not on me, no. I’m sure I can get them though, or I can give you the number for my pediatric doctor and her office can fax them over.
Doctor: So you don’t have them on you?
Ali: Um, no…I do not have the results from the endoscopy I had done when I was 7 years old currently in my purse. I’m sorry.
Doctor: OK. Well, I actually don’t think you have Crohn’s disease.
Ali: [Blank stare]
Doctor: When I did your colonoscopy [note: this was in April 2008] I actually didn’t see signs of Crohn’s disease. To me it looked like a bad case of ulcerative colitis.
Ali: Um, OK. That’s brand-new information. Why didn’t you tell me that at the time, or in the three years since then? And why have you been treating me for Crohn’s if you don’t even think I have it?
Doctor: Because you told me you were diagnosed with Crohn’s.
Ali: I’m glad you trust my opinion over your own. [Nervous laugh.]
The rest of the appointment involved me asking a ton of questions about how exactly the diseases are different, whether he would have treated me any differently for Crohn’s versus colitis, plus me repeatedly asking him why the F he never spoke up, especially since I have been in so many times since that colonoscopy.
Colonoscopies are sexy. Trust me. Super good time.
So the doctor gave me Steroids, and took lots of blood to ensure that this is, in fact, a Crohn’s flare.
I’m confused. Clearly.
The doctor wants to prescribe me two additional types of medications — pills I would have to take daily, and lots of them (8+ per day). I said I don’t want to be on that many different kinds of drugs, especially not “indefinitely.” He also wants to up the dosage and frequency of my Remicade treatments.
And he wants me to come in for another colonoscopy ASAP.
I’m sure this doctor is a smart guy. And I don’t think he’s a bad man. But I also don’t think I’ll be seeing him again. I’m ready to finally seek out a second opinion and find a doctor who understands me. I don’t care what my eventual diagnosis is, but I’m totally confused right now.
Yesterday certainly wasn’t all bad, though: The Sweat shirts arrived!
NO, there are not additional shirts for sale. These are shirts that were already ordered, and last night my favorite JackRabbit employee and I addressed envelopes, stuffed envelopes and sealed them up with sweaty love.
I woke up this morning with some rough pain, so I took a sick day…again.
I am still in my pajamas. I am not going running. And I have good company/a nice boy taking care of me, because Crohn’s is not contagious, and neither is colitis. Or whatever I have.
Now back to watching “Modern Family.” Sick days aren’t all bad.
And someday soon I will start posting about running again. I promise. Running is cooler than Crohn’s…