- I want to appreciate "big pharma" for creating this medicine that seems to work for me, but my god... There has to be a better way. about 21 hours ago ReplyRetweetFavorite
- So thank goodness for insurance. It's still too expensive, but drug companies charing $55,000 for a one-time-use drug??? That is sick. about 21 hours ago ReplyRetweetFavorite
- Just got the hospital bill for my 1st Stelara infusion. Billed at $55,000. (Insurance covered all but $1,050, phew.) Still, THAT IS F*CKED. about 21 hours ago ReplyRetweetFavorite
- October 26, 2012 by AliPlease Let Me Make Your Day (That Means A Giveaway!)
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Ali At The Doctor
Wednesday! When the heck did it become Wednesday? This week is flying.
I have a good feeling about today — anybody else?
Despite the fact that I hardly slept last night (I cannot for the life of me figure out how to be in bed before 11 pm), plus the fact that I woke up due to stomach miserableness around 4 am, the day turned around fast.
At 5 am I was up and ready to go. Coach Cane didn’t want me running today, so I packed up all my goodies and went to the gym for spinning.
I also dumped an entire container’s worth of my delicious trail mix all over my entire kitchen right before I left. I am clumsy.
Now if you recall, I do not love this Wednesday morning class. I was kind of hoping there would be a sub in place of the crazy teacher who whispers into the microphone the entire time, but no such luck.
He didn’t bother me today, though. I kind of zoned out the entire time and didn’t focus on his chants and techno music.
Instead I thought about all the crap sitting on my To Do list. But I won’t get into that.
So I spun my little heart out but kept the resistance light because I don’t want to work my body too hard before the Fairfield Half Marathon this weekend. I need fresh legs (and a functioning stomach, but again, won’t get into that just yet).
I didn’t mind getting ready at the gym today, either. Turns out, I can get myself showered, makeupped and dressed in like 7 minutes when I’m not at home, distracted by my computer and the Today show.
I also packed the exact same outfit I wore the last time I morning-gymmed, because it’s easy.
I swear, this dress (from Anthropologie) was the best investment ever. I think I wear it every single week.
I’m also wearing new earrings that I bought at a cute jewelry store when I was in Charlotte.
Note: If you know how to reduce under-eye puffiness and giant, sleeping bag-sized bags, please let me know. Because…wow.
Should we talk about my health now? Sure. I’ll update you, if you’re into that kind of thing.
I went to the doctor yesterday! I was his second appointment of the day and only had to sit in the waiting room for 30 minutes before he could see me. Plus travel, plus waiting in the exam room = total midday out-of-office time 2 hours. Score! (Sorry, employer. Had to be done.)
The reason for this appointment was basically to get more bloodwork done since I feel drastically worse than the last time I saw my doctor. Last Thursday he prescribed me a low dose of Prednisone, a steroid that usually helps calm the symptoms of a Crohn’s Disease flare-up.
Unfortunately, after almost a week, the medicine hasn’t helped. I’m still experiencing bad stomach pains and, you know, other stuff, and I would very much like this all to go away. So naturally my doctor wanted to see me in person to discuss this. Another $40 copay. Score again!
Here a brief recap of how yesterday’s appointment went down:
[Doctor enters room, 30+ minutes past scheduled appointment time]
Doctor: You look tan. Did you go on vacation?
Ali: I was in Charlotte for the weekend.
Doctor: I hope you know to wear sunscreen. That’s not going to help your cause.
Ali: I do. I wore sunscreen the whole time. Is sun exposure related to Crohn’s Disease?
Doctor: No, but you never know.
Ali: Oh…OK. So I’m still sick.
Doctor: OK, tell me what’s going on.
[Ali explains that every time she eats, she feels sick. Nothing digests well. She has to use the bathroom a lot. She is very sexy.]
Ali: I really want to get better as soon as possible because I have a race this weekend.
Ali: Why do I have a race? Because that’s what I do…I run. I signed up for the race a while ago and I’d like to get better so that I don’t have to stop and use the bathroom a bunch of times on the course.
Doctor: Well I’ll write you a doctor’s note to get out of the race.
Ali: I don’t need a doctor’s note… I’m not sure…who I would give that to…or why… Would it be possible to up the dosage of steroids?
Doctor: OK. Take one additional pill per day [putting me at 30 mg/day] until you start feeling better.
Ali: Awesome, that sounds great. [Ali pictures herself with puffy cheeks that are sure to develop over the next few weeks. Ali longs for the days when she was little and healthy and happy to be sitting in cabinets, coloring.]
Ali: And I’m getting Remicade next week. Should we up the dosage of that, too?
Doctor: Yup. Let’s do that.
Ali: Cool, anything else? I’m still really dizzy all the time.
Doctor: Dizzy or nauseous? Last time you were here you said you were nauseous.
Ali: Oh. I’m honestly not sure I know the difference between the two.
Doctor: Dizzy means the room is spinning. Nauseous means you feel like you have to throw up.
Ali: Oh. I’m just dizzy then. Really dizzy. Not nauseous.
Doctor: Guess we didn’t need to do that pregnancy test then.
Ali: Nope. We really didn’t.
Doctor: Alright, well let’s do bloodwork today and test your iron levels. You’re probably anemic [common for me during flares]. Depending on the results of the bloodwork I may want to do a colonoscopy again in a few months [I had one done in April 2009 but haven’t had another since].
[Long pause. Really long, dramatic pause.]
Doctor: I really don’t think you should be running. You shouldn’t do the race this weekend and you may not be made for running.
Ali [in head]: F you, crazy doctor.
Ali [in reality]: I can run. I promise. I’m smart, I’m not going to push myself harder than I should. But I’m actually working hard right now to prove that people with Crohn’s and Colitis can run marathons and lead normal lives. So…yeah.
[Doctor shakes head. Ali senses she is not his favorite patient.]
Doctor: Call me Thursday for your bloodwork results. I want to see you again in a few weeks.
Ali: Can we follow-up over the phone? I don’t want to pay another $40 to come in. I’m pretty poor. I’m a writer.
Doctor: I’d like you to come in.
Then they took my blood, and while I was waiting for the nurse to come in the room I peeked on the laptop at his notes from the meeting.
Note: 26 y/o female, currently training for a marathon. Running excessively.
He hasn’t seen excessive yet.
Thank you all for your care, concern and sweet thoughts and comments over the past month or so. It helps me feel so much better mentally knowing that I’ve got all the support in the world as I attempt to get healthy and run a marathon.
I know I can do it — there’s not a shred of doubt in my mind. With the proper treatment from my doctors and the promise to take care of myself (really, I promise), I’m confident I’m going to make the Hamptons Marathon eat my dust in September. 26.2 miles > Crohn’s Disease.
Coming up today:
- Computer training at work all day long. We’re switching over the systems here from one design program (Quark) to another (InCopy/InDesign) and today is the big “everyone gather in the really cold conference room to play and learn” day. Should be fun.
- Meeting with Coach Cane! He rode 100 miles last night until 1 am and is making time today to meet with me to discuss our game plan for Sunday’s race. (I already have a plan: avoid the bathrooms if possible and just get through it. Curious to see what his plan involves.) Coach Cane recently wrote this on his Run For The Rabbit blog: Much to my chagrin, the runners are fighting crazy work and travel schedules, nagging minor injuries (that I need to make sure don’t get worse, while making sure we don’t fall behind in training), goal-oriented ambitious personalities that don’t like doing easy runs no matter how much I stress their importance, and nervousness as they realize that 26.2 miles is a long way to go. I emailed him and said I didn’t know who he was referring to regarding the “ambitious personalities.” He said I am the “ring leader” of that group. I felt proud, not ashamed.
- Vino Y Yoga at Pure Yoga tonight! We get an hour of Ki Power Vinyasa followed by 30 minutes of wine tasting. Seriously? That sounds amazing.
TELL ME: Do you listen to your doctor? I’m in no way saying you should always listen to your doctor, or that you should always seek a second opinion or that you should always just listen to yourself. But I am curious, especially in talking to athletes, how much do you honor what your doctor advises and how much do you stick to what you know about your own body?
I’m no doctor — I don’t claim to know very much about anything, let alone this mysterious Crohn’s Disease I seem to have — but I do know, deep down, that there are certain things I’m capable of, and I’m hesitant to give up running entirely because my doctor advised it without much reason supporting that. I respect him, I respect his vast knowledge and I trust my health in his hands. But I’m interested to see what others think and what experiences you’ve had at the doctor.
Posted in Crohn's disease, Gym Classes, Hamptons Marathon Training, Outfits, Run For The Rabbit, Running, Workouts and tagged Anthropologie, Coach Cane, Colitis, Crohn's Disease, Crunch, Doctor, Fairfield Half Marathon, Hamptons Marathon, Prednisone, Pure Yoga, Remicade, Run For The Rabbit, Running, Spinning, Steroids-